Intellectual and Developmental Disabilities

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Making the Long-Term Services and Supports System Work for People with Dementia and Their Caregivers

Source: TAE
States serve a substantial number of people with dementia and their family caregivers in their Aging Networks and LTSS systems. Serving this population effectively involves accommodating the needs of a population that, in addition to memory loss, experiences a variety of physical, cognitive, and behavioral symptoms resulting from dementia, along with other medical conditions. In model dementia-capable systems, programs are tailored to the unique needs of people with Alzheimer’s disease or other dementias, and their caregivers.
(PDF) Caption: Making the Long-Term Services and Supports System Work for People with Dementia and Their Caregivers
(PDF) Caption: Dementia Capability Toolkit
Associated Date: November 2011

ADSSP Grantee & Partner Monthly Teleconference, February 14, 2013: Caregiving for people with dementia and intellectual disabilities, including Down syndrome

Source: ADSSP National Resource Center
Caregiving for people with dementia and intellectual disabilities, including Down syndrome

Presented by: Seth Keller, MD, Co-Chair, National Task Group on Intellectual Disabilities and Dementia Practices and Immediate Past President, American Academy of Developmental Medicine and Dentistry.

Madeleine Will, Director of the National Policy Center and Vice President for Public Policy of the National Down Syndrome Society.

Participants learned about: 1) The impact of caring for a family member with dementia and an intellectual disability, including Down syndrome; 2) Community living providers and their work with people with dementia and intellectual disabilities, including Down syndrome; 3) The perspectives of a family caregiver on the challenges of caring for a family member with dementia and Down syndrome.

(Audio) Caption: Caregiving PWD and ID
(Powerpoint) Caption: Caregiving for People with Dementia and Intellectual Disabilities such as Down Syndrome
(Powerpoint) Caption: Resources for Caregivers of Persons with Dementia & Intellectual Disabilities
(Word) Caption: Agenda
(Word) Caption: Additional Resources
Associated Date: February 14, 2013

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