Intellectual and Developmental Disabilities
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Data and Services for Younger Onset Dementia, including Down Syndrome: Annotated Bibliography Source: ADSSP National Resource Center
This annotated bibliography provides a summary of the articles available on data and services for people with younger-onset dementia (dementia developing in patients younger than 65 years of age, abbreviated YOD) and people with Down Syndrome who also have dementia. (Word)
Caption: Data and Services for Younger Onset Dementia, including Down Syndrome: Annotated Bibliography Associated Date: September 2013
Making the Long-Term Services and Supports System Work for People with Dementia and Their Caregivers
States serve a substantial number of people with dementia and their family caregivers in their Aging Networks and LTSS systems. Serving this population effectively involves accommodating the needs of a population that, in addition to memory loss, experiences a variety of physical, cognitive, and behavioral symptoms resulting from dementia, along with other medical conditions. In model dementia-capable systems, programs are tailored to the unique needs of people with Alzheimer’s disease or other dementias, and their caregivers.
(PDF) Caption: Making the Long-Term Services and Supports System Work for People with Dementia and Their Caregivers
(PDF) Caption: Dementia Capability Toolkit
Associated Date: November 2011
ADSSP Grantee & Partner Monthly Teleconference, February 14, 2013: Caregiving for people with dementia and intellectual disabilities, including Down syndrome
Source: ADSSP National Resource Center
Caregiving for people with dementia and intellectual disabilities, including Down syndrome
Presented by: Seth Keller, MD, Co-Chair, National Task Group on Intellectual Disabilities and Dementia Practices and Immediate Past President, American Academy of Developmental Medicine and Dentistry.
Madeleine Will, Director of the National Policy Center and Vice President for Public Policy of the National Down Syndrome Society.
Participants learned about: 1) The impact of caring for a family member with dementia and an intellectual disability, including Down syndrome; 2) Community living providers and their work with people with dementia and intellectual disabilities, including Down syndrome; 3) The perspectives of a family caregiver on the challenges of caring for a family member with dementia and Down syndrome.
(PDF) Caption: Caregiving for People with Dementia and Intellectual Disabilities such as Down Syndrome
(PDF) Caption: Additional Resources
(Word) Caption: Agenda
(Audio) Caption: Caregiving PWD and ID
(Powerpoint) Caption: Resources for Caregivers of Persons with Dementia & Intellectual Disabilities
Associated Date: February 14, 2013